Went into clinic this week as usual for another dose of Vinblastine.
Finally managed to see my doctor and he had heard back from the surgeon - the surgery is out of the window.
Typical.....
The surgeon explained he didn't want to attempt any surgery as it would probably do more harm than good, which i suppose is a good enough reason.
Doesn't really help me though....i'm stuck in another rut again.....don't know what is going to happen next.
I've got to go back next week, not for chemotherapy, but for a chest x-ray.
This is to see if the vinblastine has been working and the outcome of it will help doctors decide what to do next.
If the tumour has responded to it then i will most likely continue with the vinblastine, but if it hasn't? The doctor doesn't know yet. I don't think they have any clue to be honest, stupid rare tumour hehe!
Aside from that nothing else was really mentioned, apart from the fact he is still waiting for a reply from a radiotherapy doctor to see if there is any chance of that.
Kind of a let down once again. Don't really know if it's bad or good news that the surgery can't go ahead. It's good in the fact that they are not risking my life attempting it and also bad as they don't have any other options at the moment.
Just have to wait and see really. Wow i seem to use that word so often when it comes to talking about my treatment......waiting
I've just had the best two days ever as well!
Me and my mom had our trip to London and it was amazing, just as i hoped it would be.
It was great to just get away from everything, have a proper rest (though we hardly got any rest at all!)
Again went to see a musical and this time however we day ticketed for it. This is when the box office releases 24 front row tickets every day for a discounted price.
Only problem?
You have to queue for ages in order to get them. The box office opened at 10.....we were queueing from quarter to 6 (and yes this is in the morning lol!)
Four hours in the dull weather, sore legs from the walking and a cold to match, but was it worth it?
You BETCHA!
We sat front row dead centre and it was the best thing ever.
The actors were amazing and their voices were mindblowing.
Saw everything in so much detail...it was seriously breathtaking.
Never had an experience like it before and probably never will again. Was amazing! 16/05/07 A Day To Remember :)
Everything is so expensive in London though, it makes me wonder how people manage to set up home there....i can see why you have to have a really good job! It cost me a fortune just to get there and sleep over for one night!
Shame we had to come back, seems like we were never away.
Kind of like a snap back to reality, back to the real world again.
Ahh well life goes on eh?
Will update again next week, once i get the results of the scan
Finally managed to see my doctor and he had heard back from the surgeon - the surgery is out of the window.
Typical.....
The surgeon explained he didn't want to attempt any surgery as it would probably do more harm than good, which i suppose is a good enough reason.
Doesn't really help me though....i'm stuck in another rut again.....don't know what is going to happen next.
I've got to go back next week, not for chemotherapy, but for a chest x-ray.
This is to see if the vinblastine has been working and the outcome of it will help doctors decide what to do next.
If the tumour has responded to it then i will most likely continue with the vinblastine, but if it hasn't? The doctor doesn't know yet. I don't think they have any clue to be honest, stupid rare tumour hehe!
Aside from that nothing else was really mentioned, apart from the fact he is still waiting for a reply from a radiotherapy doctor to see if there is any chance of that.
Kind of a let down once again. Don't really know if it's bad or good news that the surgery can't go ahead. It's good in the fact that they are not risking my life attempting it and also bad as they don't have any other options at the moment.
Just have to wait and see really. Wow i seem to use that word so often when it comes to talking about my treatment......waiting
I've just had the best two days ever as well!
Me and my mom had our trip to London and it was amazing, just as i hoped it would be.
It was great to just get away from everything, have a proper rest (though we hardly got any rest at all!)
Again went to see a musical and this time however we day ticketed for it. This is when the box office releases 24 front row tickets every day for a discounted price.
Only problem?
You have to queue for ages in order to get them. The box office opened at 10.....we were queueing from quarter to 6 (and yes this is in the morning lol!)
Four hours in the dull weather, sore legs from the walking and a cold to match, but was it worth it?
You BETCHA!
We sat front row dead centre and it was the best thing ever.
The actors were amazing and their voices were mindblowing.
Saw everything in so much detail...it was seriously breathtaking.
Never had an experience like it before and probably never will again. Was amazing! 16/05/07 A Day To Remember :)
Everything is so expensive in London though, it makes me wonder how people manage to set up home there....i can see why you have to have a really good job! It cost me a fortune just to get there and sleep over for one night!
Shame we had to come back, seems like we were never away.
Kind of like a snap back to reality, back to the real world again.
Ahh well life goes on eh?
Will update again next week, once i get the results of the scan
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